Karongi ramps up autism awareness drive to combat stigma, urge early support
By The Inspirer.
Rwanda Parents’ Initiative on Autism (RPIA) has intensified efforts to raise awareness about autism in Karongi District, calling for an end to harmful beliefs that link the condition to witchcraft, demons, or curses, and urging parents to seek early medical and social support for affected children.
During the outreach, RPIA representatives explained that autism—also known as Autism Spectrum Disorder (ASD)—is not a disease but a neurodevelopmental condition that affects communication, social interaction, and how individuals perceive the world. They emphasized that autism is present from birth and lasts a lifetime, though its exact cause remains unknown.
Parents were guided on how to identify early signs, including delayed speech, difficulties in social interaction, repetitive behaviors, strict adherence to routines, and heightened sensitivity to noise, light, or touch. However, experts stressed that symptoms vary from one child to another.

Recent data from the United States (2025–2026) indicates that one in every 31 children is diagnosed with autism. While Rwanda lacks comprehensive national statistics, stakeholders say cases are increasingly visible, underscoring the urgency for awareness and intervention.
RPIA Executive Director Umutoni Larissa noted that since its establishment in 2015, the organization has brought together over 300 parents, though many more families remain unreached. She said the initiative focuses on advocacy, parent training, and psychosocial support, helping families better understand and care for their children.
She highlighted that many parents initially feel overwhelmed upon discovering their child’s condition, often due to widespread misconceptions in communities. Some still believe children with autism are bewitched or possessed—an attitude she said must change. With the right support, she emphasized, children with autism can grow into productive members of society.

Religious and local leaders echoed the call to end stigma. Anglican Bishop of Karongi, Rukundo Méthode, dismissed beliefs associating autism with evil spirits, warning that such misconceptions push families toward traditional healers instead of proper care. He stressed that disability is not a punishment from God but part of human diversity.
Karongi District Mayor Muzungu Gerald also urged families to prioritize medical attention, noting that attributing autism to curses or supernatural causes reflects a lack of awareness. He called for collective responsibility in ensuring affected individuals receive appropriate care and protection.
The campaign comes ahead of World Autism Awareness Day marked on April 2 under the theme: “Autism and Humanity – Every Life Matters,” reinforcing the message that inclusion, dignity, and understanding are critical for people living with autism.

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